Information and support for caregivers
Use these helpful resources at your next appointment
Download and fill out a Symptom Questionnaire to bring to your child’s appointment to help you explain what your child is experiencing.
Doctor Information Sheet
Print out a Doctor Information Sheet to give to your child’s doctor that explains the signs and symptoms of AADC Deficiency. This sheet also provides information about tests that can determine if your child has AADC Deficiency.
There are a variety of websites and support groups that can help caregivers like you find information and resources. Here are some that might be right for you:
When you have a child with a rare disease like AADC Deficiency, healthcare costs can become a concern. Medicaid may be an option for many families.
Find out about your state’s Medicaid coverage.Go now